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Founder variant in OTOG causing non-syndromic sensorineural hearing loss in Irish traveller population

A dispatch from PubMed — filed

Deafness is a common multifactorial sensory disorder with numerous underlying causes (genetic, environmental) and a broad range of impact on humans. To date, 156 non-syndromic hearing loss-associated genes have been identified (DFN) and 75%-80% follow a recessive inheritance pattern (DFNB)....

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Discussion

Signed responses from readers of the wire.

Clinical Takeaway

Audiologists and genetic counsellors serving Irish Traveller patients with unexplained sensorineural hearing loss should consider OTOG founder-variant testing; no change to standard audiological management is indicated based on this report alone.

Why It Matters

Identifying population-specific founder variants improves the diagnostic yield of genetic hearing loss panels and enables more precise genetic counselling for underserved communities like the Irish Traveller population.

Key Points
  1. 01A founder variant in OTOG gene identified as cause of non-syndromic sensorineural hearing loss in Irish Travellers.
  2. 02Adds to the 156+ known non-syndromic deafness loci, expanding the genetic map of hearing loss.
  3. 03Founder effects occur when a small ancestral population passes a rare variant to many descendants.
  4. 04Published in Journal of Medical Genetics (PMID 42642215, DOI 10.1136/jmg-2026-111607).
  5. 05Findings have implications for targeted genetic screening panels in this ethnic group.
Claims & Evidence

A founder variant in the OTOG gene causes non-syndromic sensorineural hearing loss in the Irish Traveller population.

studysupported

There are now 156+ known non-syndromic deafness loci.

studysupported
Research metadata
PMID
42642215
DOI
10.1136/jmg-2026-111607.
Journal
Journal of Medical Genetics
Publication type
research_article
Evidence level
4
Population
Members of the Irish Traveller population with non-syndromic sensorineural hearing loss
Intervention
Genetic sequencing to identify OTOG founder variant

Primary outcomes

Identification of a pathogenic founder variant in OTOG; Characterisation of associated sensorineural hearing loss phenotype

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